3 Comments

Thank you for sharing all that you do. I am new to all this. Having experienced pain for several weeks I saw my GP who suspects fibromyalgia but we’ll need to rule out another else autoimmune too. The NHS waiting lists are long and now I’m just trying to find some pain medication that works - after a few days they all stop working. Reading as usual has been my go-to source; to find others writing like yours and knowing I’m not the only one is huge. I’m so sorry for your pain too.

A friend messaged today to tell me about a book I might like which I’ll share here too in case anyone else finds it useful. It’s called Tender Points by Amy Berkowitz. I believe it was originally published in 2015 but there’s a updated version available; this is its summary:

‘Tender Points is a narrative fractured by trauma. Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores chronic pain, sexual violence, and medical sexism through lived experience and pop culture.’

Expand full comment
Nov 22, 2022·edited Nov 22, 2022

Hi Margeaux! This is the first newsletter of your's I've read and I appreciated it deeply. I'm disabled with low support needs, but have survived 4 hospitalizations for critical, unexpected medical trauma in the last 8 weeks. Thank you for sharing your story and making me feel a sliver less alone in mine.

ps - I also see a somatic therapist and it's the best!

Expand full comment